Chuck,
Hi...I am dealing with pancreatitis and I have just been amazed at the research and the lack there of. My mom is religiously searching for answers because she doesn't want to face the music of her 26 year old daughter having such a disorder. Back in May of 2006, I was diagnosed with Pancreatitis. I was put on gut rest several times and about 5 months later, I had my gallblader removed and the pain suddenly worsened. I went to see a pancreatitis specialist who performed an ERCP/stent placement due to SOD. He told my family that I had three bile ducts that were not prpoperly functioning and one that was completely scared shut. The pain gradually got better but now it has come back but not as severe. I have lost tons of weight and am having a hard time gaining a simple pound. My primary physician told me it was due to malabsoption. My husband and I have made several trips to the ER and my Lipase and Amylase levels always appear to be normal. I am tired of dealing with this. I am glad there are people like you on this meassage board to lend an ear and some sound advice. In May 2006, my levels were in the thousand range and since my gallbladder has been removed they haven't been elevated anywhere near that. This is a tricky tricky disease that seems like only those who are close to us understand it. It just frustrates me more times than not. When the doctors can't pinpoint it on an MRI, CT Scan, Blood test, Berium test, etc, it's like it's all in our heads. LOL. Although there has been plently of evidence that suggests this is the problem. Do you have a suggestion for weight gain? I am currently taking pain meds when needed and I take the CREON 20 (pancreatic enzymes) Do you believe this will help with some chance to gain weight? Please help!!! I am just at a lost for words and understanding. How long have you had pancreatitis? Just recently I was diagnosed with CHRONIC! It has changed from pancreatitis to CP. Do you have the frustration of going to the ER and your levels are all normal? Please keep in touch. I am curious to talk to someone else who shares in my angony.
Thank you,
Frustrated CP Patient