Hi to all...those that know me like CJ how are you and other longtime members. Hello to everyone I dont know.
Im sorry its been quite awhile I havent been around. been crazy over here. Those that know me/family --and my son--can you believe he is now 6/in first grade. Seems like yesterday we were talking when I was pregnant with him with this disease and all the obstacles. those that dont know me/story and wish to read it its at the following site:
http://www.top5plus5.com/Our%20Stories_files/Cindys%20Story.html
Im hoping to get back here alot more often & be involved. For support for you and hopefully me too. Been going thru alot of tests and upcoming for other medical issues besides the CP. Something new they are trying to figure out what is causing it and thought to ask you all maybe someone else has this-neuropathy. I had a test done on both legs and it said bilateral neuropathy severe. Then last week tests on my hands but dont have the results yet. I have not had diabetes but Im right on the board but if anything I have more issues with low sugars-shaking etc. I went for these 'electrode' tests in my legs cause of the horrible creepy crawlers in my legs when in bed/sleep which Im thinking RLS but they are not sure yet. First they want to see if its just legs or my whole body nerve issues. I have been for years due to the pancreas stuff on neurotin supposed to be for nerve issues too but it doesnt do anything for this issue having. I also have 2 go for MRI of lumbar spine. I dont think any of other stuff is connnected but I also have leaky vein in one leg. Asthma which is not good right now even with 1 inhalers have to see pulmonologist. I also have horrible sweating which I think has to do with premenipause but the dr says side effects from meds-anyone else have this? I mean if I am doing anything like cleaning etc Im dripping sweat and then in some areas I end up like with a rash. Couple times with the rash and worse like sores had to go on steroids. Have had all the cultures etc all negative for anything else. For whatever reason seem to get them on my back/shoulder area. Anyone else?
Thank you and talk to you soon
Cindy